Women’s Stories Program: Building Genetic Awareness

Episode 6 of the Women’s Stories Program features Lubna Saeed, a genetic specialist and founder of My Gene Lab, who has contributed significantly to advancing genetic testing services in Jordan. In this episode, she discusses her journey into genetics, the development of her laboratory, and the role of scientific innovation in improving healthcare outcomes and awareness across the region.

Lubna Saeed’s Work at My Gene Lab
Lubna Saeed studied genetics at the Jordan University of Science and Technology, where her interest in the field was driven by its complexity and the sense of discovery it offered. After graduating, she began her career at Farah Hospital, where she encountered numerous cases involving miscarriages and genetic conditions. Seeking to expand her expertise, she later trained at Yale University in the United States, gaining exposure to advanced genetic technologies and practices.

Through her clinical experience, Saeed found that there was a lack of accessible genetic testing for inherited and congenital diseases for Jordanians. In response, she founded My Gene Lab, initially focusing on chromosome analysis. Over time, the lab expanded its services to include comprehensive genetic testing and became a regional referral center, receiving cases from across neighboring Arab countries. As a result, Jordan has evolved into a destination for genetic testing and fertility-related services, rather than a country from which patients must travel abroad for care.

A key aspect of Saeed’s work is simplifying complex genetic information for patients. She emphasizes the importance of communicating results in a clear and reassuring manner, avoiding unnecessary fear while still conveying accurate medical information. Her work addresses significant health concerns, including the reality that a large proportion of early miscarriages are linked to chromosomal abnormalities. Through testing methods such as preimplantation genetic testing and non-invasive prenatal screening, patients are able to identify potential genetic conditions early in pregnancy or even prior to embryo implantation.

Saeed shares several cases that highlight the impact of these services. In one instance, a patient who had experienced multiple miscarriages was able to identify a previously undetected genetic abnormality through advanced testing at My Gene Lab. This allowed for the selection of healthy embryos, preventing further pregnancy loss. In another case, genetic testing provided clarity for a teenage patient experiencing delayed development, demonstrating how such tools can offer answers in complex medical situations.

Beyond treatment, Saeed advocates for preventive genetic testing, particularly for individuals with a family history of diseases such as cancer or other hereditary conditions. She stresses that while carrying a genetic mutation does not guarantee the development of disease, it can serve as an important early indicator and guide medical monitoring. Her work also extends to applications such as understanding family lineage and supporting forensic investigations.

Saeed also addresses social and cultural factors that influence genetic health, including the prevalence of consanguineous marriages in the region, which can increase the likelihood of inherited conditions. By offering testing before marriage or during pregnancy, her lab provides individuals and families with information that can support informed decision-making.

Despite her achievements, Saeed has faced challenges, particularly as a woman balancing professional responsibilities with family life. She recalls returning to work shortly after childbirth due to the urgency of patient needs and encountering skepticism about her ability to continue her career. In response, she established a team composed entirely of women, reflecting her belief in their capability, resilience, and contribution to the scientific field.

Ultimately, Saeed views her work as a mission to expand access to knowledge, reduce misinformation, and empower individuals to take control of their health. She emphasizes that the advancement of genetic services in Jordan is both necessary and achievable, and highlights the broader strength of Jordanian professionals, particularly women, in contributing to scientific and societal progress.

Episode Link: بناء وعي جيني… حين تقود النساء المعرفة العلمية إلى المجال العام | موقع عمان نت

 

This program is prepared and presented by Ataf Al-Rodan.

 

This podcast segment was prepared by our colleague Hadeel Al-Saabi.

The Women’s Series Program is funded by IMS.